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The different roles of daughters, sons, daughters-in-law and spouses as caregivers for stroke or chronic disabled patients

The roles of daughters as caregivers compared with spouses, sons, daughters-in-law

are different.33 Stroke patients’ spouses, sons and their daughters-in-law might

probably share partial responsibility for caregiving but are less likely to be primary

caregivers, and therefore may have less influence on patients’ discharge distribution.

Some studies observed that spouses frequently became primary caregivers. However,

we observed that the patients’ spouses were elderlies themselves and might have less

capacity to take the caregiver responsibility alone. Sons sometimes serve as decision

makers for parent care but less often become household caregivers.18, 19, 34 Sons may

be unmarried. If they are married, their wives, the daughter-in-laws of stroke patients,

!can sometimes become household caregivers.34, 35 In modern urban areas in Taiwan,

sons and daughters-in-law commonly live separately from their parents and may be

less influential on patients’ discharge distribution than daughters.

We explained that daughters, being the younger female members in these families, are

more capable of providing physical aids to the patients than stroke patients’ spouses.

Some married daughters provide care for elderly parents and children simultaneously,

being recognized as the “Sandwich Generation”,36 while some unmarried daughters

live with their parents, having fewer obstacles to start caregiving. Besides caregiving,

some daughters in Taiwan can be decision makers and even sources of financial aids

for elderly parents’ care. We hypothesized that if any of patients’ daughters can take

such role, these stroke patients may have higher chances to return to home than those

without daughters and by this way, number of daughters is influential to parents’

chances to home discharge.

!5.6. Other predictors for failure of home discharge after post-acute inpatient

rehabilitation

The influence of self-care function on outcome

Stroke patients’ functional ability on admission to inpatient rehabilitation is proved to

be an important predictor.12, 13, 16, 17, 19-22 Pohl and colleagues reported that patients

with a FIM score lower than their population mean FIM score had an OR of 5.8 for

residential care discharge.19 Other studies using FIM presented ORs between 1 to 3

for the protecting effect of better self-care function against poor outcome of failure of

home discharge. The study by Pinedo reported that patients with BI scores between 0

and 20 had a 2.9 fold risk compared with those with higher BI scores to be discharge

to residential care.13 This study confirmed the influence of good patient function on

successful home discharge.

The tools of assessing self-care function

In this study, we used the BI to evaluate functional ability for basic activity of daily

life.29 The BI was the most frequently used tool and the FIM being the second.27 It has

strong psychometric properties and is more feasible from a practical standpoint.

!Therefore we chose the BI to measure patients’ functional ability in our study.

Despite that our study population in average had severe dependence on admission and

even after they finished the inpatient training, a 10-point BI gain we observed was

clinically important.31,37 This supported that our rehabilitation team in this study

setting provided post-acute stroke rehabilitation with desirable and comparable

effectiveness compared with other studies. Therefore, our study findings can be

reliably compared with the findings from previous studies.

The timing of assessing self-care function

Studies usually assessed patients’ function on their admissions since this assessment

can be performed in a package of other admission routines. Also an early acquisition

of functional information may help early prediction of rehabilitation outcomes.

Function at discharge is another popular choice, like we did in our study. It is not only

a convenient time point to assess in clinical practice but also a time point of greatest

relevance to discharge disposition. Function scores of the same individual measured

at different time points have high correlations, as we proved in this study. Therefore,

choosing function on admission or at discharge may probably yield similar results.

!Some studies tried to determine whether rehabilitation gain, which is the difference

between the function on admission and at discharge, predicts rehabilitation outcomes,

including discharge disposition.17, 23 This predictive value is not as established as

function on admission and at discharge.

The influence of age on outcome

An older age, in previous researches, is associated with higher risk of not discharging

to home.17-21 However, all reported ORs were around 1-1.5, except in the study by

Tanwir.20 In their study, stroke patients less than 65 years old had an OR of 2.8,

patients between 65 and 85 years old an OR of 1.7 for home discharge, compared

with patents older than 85 years old. In our study, however, an older age was related

with lower risk of failure of home discharge, although the OR was close to 1. One

possible explanation is that elderly disabled stroke patients and their family members

tend to set low goals for these patients’ future self-care abilities. These elder patients

also tend to have more prolonged cognitive confusion and more chance of depression

after stroke. When arranging for discharge disposition, their key decision makers may

choose to bring them home instead of arrange further hospitalization which requires

!complicated processes or arrange long-term care facilities admission which is not a

popular choice in Taiwan. On the contrary, young stroke survivors and their families

expect highly of the patient. So these young patients may tend to go for subsequent

inpatient rehabilitation in other hospitals.

The correlations between predicting factors

Functional ability is highly correlated with stroke severity, cognitive impairment,

aphasia and age in our study. Therefore, we only adjusted for age and functional

status into the proposed models and left the other factors out. Age and functional

status, remained statistically significant after adjusting for confounding factors.

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