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參考文獻

在文檔中 罕見疾病家庭的壓力源 (頁 21-24)

王天笛(1996) :台灣地暉 1(.\智發展轉礙幼晃

平湖據會服轉換嚮及其輯攝問題研究。行 政院蟬科會導體研究計叢成果報告。

王聽黨、張忘掉(1996) :揀起殘障兒畫家聽 執行賠家;當療針章所居臨之問題。中華轎 療攏. 21(4) • 215-222 0

ff敢說衛生署關民健康局姆說組 (004) :罕 兒先夫體代謝疾精通報與成果。載於李明 亮主編:代謝健摸拷:自費聽聽(402-405

) 0 告中:衛生著攝民髏康路。

李明亮 (2004) :錯論。載於李明亮三位騙:

H!

謝世棋禱:台轉種驗( 1-3 頁)。台中:衛 生著屆民權藤局。

利翠羈 (2005) :身心蟬礙兒畫家庭中夫妻的 農力、付出與恩情。中華心理衛生學釋,

18(2) • 25個5尋。

聽月清 (995) :殘障者聽其家鷗在家或社臨 聽講當家之研究一F 以家屬為中心 J 或 F 社 攝輯顧 J 籬輯服發橫式可行之揮誨。行政 院攝科會專題研究計鑫成果報告。

揮重當踹、吳明擇、唐先梅、李椒娟(1999) :

婚姻與家人關錯。台北:獨立聖賢中大學。

林志鴻、曾數傑 (004) : ?:{!.晃疾病購車長期 照讀體系探討。發表於醫療弱獨與社會工 作學爾研幫會。台~t :圈立台北大學。

林金定、嚴嘉棋、陳5是在 (2005) :質性研究 方法:訪辦摸式與實施步驟分斬。身心蟬 曬研究. 3(2) • 1 泣-13 峰。

持續慧、華芸芳、陳丹枝、黨美涓 (2005):

蹄,接麻痺鵲竄父母親之壓力。台灣留學,

9(5) • 565-576 •

捐幼態( 1 會96) :質性研究的分析與寫成。體 於胡站黨主編:質性研究一篇點聲體法

(159-170 頁)。台站:鼓霞。

胡站慧、姚美華( 1 妙的:一聲質性方法上的 思考。載於胡幼童車主富麗質性研究一聽聽 團體法( 141-158 頁)。台北:張謊。

唐先梅 (2002) :由韓理過權觀點彈掰竿站接 鋪個東{會遺傳盤棋續)基閻韓斷的合Ï[

盤。行政院聲音生韓國民健鐘聲罵警告託報告。

台中:衛署調民權康賜。

徐畢鵬I (002) :智能障礙兒的婦女家聽照顧

者一以翻閱兒母親為慎。種犧研究,

49(2) • 22-28 。

許激散、邱敢藹 (2003) :家農聽聽者的聽力 海輿閻應;行為…以一鱷支持團體為憫。護 理灘麓,閱(5) • 47-55 0

據拳員、鍾曹志 (2006) :牡顯擺肌肉失望聽症 病童艾母茹臨的壓力模武。續理學農麓,

53(3) • 44-51 。

穗子菜 (1994): 一位生下先天缺臨兒的母親

期壓力及克服行為。護理雜話. 4(14) ,

39-48 。

觀子芸 (1996): 慢性痛兒童家庭的適應。讀 理事聽話· 43(4) , 49δ3 。

穗子瓷、陳月校 (1998): 草草髏先天缺陷兒讓 母輯在治療議程中壓力頓與盟員軍行為的 關素。中會體轉學轍,帥. 19-370

黨耀華

(19學4):'餐會舉氏能克幫家朧的錯擊 a

讀理研究, 2(3) , 253-262 。

聽明玲、高淑芬、黨健全(1998) :探討父母 親擷顫家中長期襲度慢性疾蜻亮的感

'6息. 特殊教育研究學刊

受。雖理研究, 6(3) , 219-230 。

組美琴 (2004) :遺傳位代語言疾痛的一做捨療 聽則。載於李明亮主編:代謝世接輯:台 灣撤職( 363-383 頁)。合中:醫生薯闢民 體康縛。

黨秀珍、曾敏傑、林志鴻(2002) :各蟬罕見 接捕相關濃濃之比較研究。台北:鑼立中 1巨大學與幫翱誡人罕晃書長擒基金會。

穆體芬、馬鳳岐、顧小曉、許洪坤、黃碧繞

(2000) :有鐘韓總病兒童之家麗的壓力

一聲母親之衝擊。轉理研究, 8(5) ,

路8-57事。

最喜獵、林金定、數農融、李志韓、吳接玲

(2004) :智能離礙者人位學轉告費與障礙

成霞部探:以台灣當方身心譚礙人口實科 種措調至是分析 a 台灣家醫諧,14' 1 咚"問3 。

Baldwin, K., Brown, R. T., Buchan訟,1., Doep峙,

K麓, Eekma詩,J., Goonan, B., & Kaslow, N. 1.

(1993). Psychosocial and family functioning in children with sickle cell syndrome and their mothers. JournaJ 01 the American Academy 01 Child and Ado/escent Psychia-try, 32, 545-553.

Barlow, J. 鼠,& Ellard, D. R. (2006). The psy-chosocial well-being of children with chronic di紛紛章, their parents and siblings:

an overview of the research evidence base.

Child: Care, Hea/t走進 Development,32(1),

持-3 1.

Bernstein, C. (1 今97). Recurrent Joss and griel in lami/ies coping with childhood chronic

iJI-ness: Stephen and his lamìly. Unpublished doctoral dissertation, Chic草草o School of Professional Psychology, Chicago: IL.

Boss,去 (1988).Fami/y Stress Management. CA:

Sage.

Brown, R. T., Eckman, J吋 Sh草中試 J. N吋 &

Thompson, N. J. (1994). Predictors of cop-ing with pain in mothers and their children with sickle ω11 syndrome. Journal 01 the American Academy olChild and Ado/escent

Psychiat紗,刃, 1246-1255.

Cannin章, R. D., Harris, E. S吋& Kelleher, K. J.

(1996). Factors predicting distre認 among

caregivers to children with chronic medical conditions. Journal 01 Pediatric PsychoJo歇,

21 , 735儡 749.

Clements, D. B吋 Copeland, L. 0., & Lo食us, M.

(1990)建 Critical times for fam 泌的 with a chronically ilI child. Pediatric Nursing, 16,

157輛 16 1.

Cotgreave, M. C. D., & French, D噩 J.(1999). The contribution 01 i/Jness付lated and non- iJ/-ness-re/ated stress to the psychoJogicaJ ad-justment 01 children wit主 asthma. Paper

prented at the 11 th Australasian Hum單位 De-velopment Conference, Sydney, Australia.

Day, R. D. (1995). Family-systems theory. In R.

D. Day, K. R. Gi\bert, B. H. Settles, & W. R.

Burr (Eds.), Research and theory in lami.鈔

science (pp. 9-112). CA: BrookslCole Pub.

Iishing Company.

Dolgìn, M. J., Phipp旱, J., & Harow,萃. (1990).

Parental man器gementof fear in chronically iIl and healthy children. Journal 01 Pediatric Psychology, 15, 733.744.

Eisdorfer, C. (1996). Families in distre鈴:Caring is more than loving. Psychiatric AnnaJs, 26, 285-288.

Faux, S. A. (1993). Siblings of children with chronic physical and cognitive disabilities.

Journal 01 Pediatric 純rsing,8, 305-317.

Feeman, D. J吋& Hage泣, J. W. (1990). Effects of childhood chronic iIlness on families. SociaJ

罕見摸病家庭的壓力擴:一環探索式的黨化研究 . 69 .

"旬rkin Health Care, 14,37-53.

GiI, K. M吋 Williams, D. A., & Thompson,訣. J.

(1 9學 1). Sickle cell disease in chil是ren and adolescents: the relation of child 如d parent

p直in coping strategies to adjustment. Jour-nal

01

Pediatric Psychology, 以 643紳663.

Hahn, B. A吟 Schone,兮,鼠, & Schone, B. S.

(1含96).Maternal psychological distress: The role of chíldren's health. Women (是 Health,

2手, 5會-75.

Hi日, R. (195 的. Generic features of families un-der stress. Social Casework, 49, 139-150.

Lave容,Y.叮& Mey-Da袋, M. (1997). When the Child Has Cancer .' EjJect

01

the lIlness on the Parents' Marital Relationsh妒. Paper presented at the 59th Annual Conference of the National Council on Family Relations, Arlìngton, VA ..

McCubbin,缸. 1., Patterson, J., & Wilson, L.

(1 98 吟聲 Fami抄 lnventory

01

Life Events and Changes (FlLE): Research instrument. St.

Paul: Unìversity of Minnesota.

McKe終吟, P. C.,

&

Price, S. 1. (1994). Families coping with problems and change: A con-ceptual overview. In P. C. McKenry & S. 1.

Price (Eds.), Families and Change: Coping with Stres.φ1 Events (pp. 1-20). CA: Sage.

Mile宰, M.S., Funk,丸& Kasper, M. 人(1 992).

The stress response of mothers and fathers of preterm infants. Research in Nursing and Health, 15, 261-2紗,

Morgan, D. L. (1988). Foc甜sgroups as qualita tive research. CA: S垂直e.

Nolan, M., Grant, G, & Keady, 1. (1996). Under-standing family care. Great Britain: Open Unìversity Pre鈴.

Olson, D. (1993). Circumplex model of marital

and family systems: Assessing family

func-tionin草﹒ In F. Walsh (制品 Normallami砂

processes (pp. 10牛仔 7). New York: Guild-ford Press.

Sahler, O. 1.芯, Roghman袋,K. J., Carpenter, P. J., Mulhern, R. K可 Dolgi綴, M. 1., Sargent, J. I屯,

B訂位在ri鈍, O. 丸, Copeland, D. 良, & Zelter, L. K. (1994). Sibling adaptation to child-hood cancer collaborative study: p認valence

of sibling distress and definition of adapt章"

tion levels. Journal

01

Developmental and Behavioral Pediatrics, 15, 353-366.

Seligman, M吋& Darlin車,泉.B. (1989). Ordinary families, special children--A systems

ap-proac先 to childhood disability. New York:

the Guilford Pre草草.

Timko, C可 Stovel, K. W., & Mo郎,袋.H. (1992).

Functioning among mothers and fathers of children with Juvenile rheumatic dise訟告 :A

longitudinal study. Journal of Pediatl唸 Psychology, 口, 705-724.

Walker, J. 0., Manion, 1. G., & Cloutier,玖 F.

(1 9學2). Measuring marital distress in cou-ples with chronically ill children: the dyadic

a旬以綿的 scale. Journal of Pediatric Psy-chology, 17, 345-357.

Weitzner, M. 入可& Knutzen, R. (1998). The im-pact of pituitary disease on the family care-giver and overall family functioning. Psy-chotherapy and Psychosomatics, 67, 181-188.

Wood, B. L.訴書93). Beyond the “伊ychosomatic

family": A biobehavioral family model of pediatric iIIness. Famíly Process, 32, 261-278.

i設議日期: 2008.01.09

接受巨姆:2008.06.06

. 70 .

Bulletin of Special Education

200 串, 33(2), 47-70

The Sources of Distress for Families with Children

在文檔中 罕見疾病家庭的壓力源 (頁 21-24)

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