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A Qualitative Study on the Needs of the Primary Caregivers for Dementia Patients

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Academic year: 2022

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There has been a lack of a complete long-term caring and service programs for patients with dementia in Taiwan. Caregivers are unble to provide dementia patients with sustainable,overall service. The aim of this research is to investigate the needs and related factors needed by the caregivers to effect necessary routines whilst caring for dementia patients..

Method:This study is based on ground theory and collects pertinent data from the subjects who are dementia patients and their family members. The family members visit them in the Memory Outpatient Clinic in Changhua Christian Hospital. Twelve subjects were randomly selected from dementia patients and caregivers respectively and interviews were conducted for collecting relevant data, including demographic data, medical history, needs of dementia patients, needs of the primary caregivers, inclusively of

caregivers and patients. Data were recorded ,analyzed and categorized from interview the raw data.

Result:From the interviews we found that seventy-five percent of the caregivers were female. Among these, three caregivers suffered from depression from their work with dementia patients. All of the twelve primary caregivers are family members of the dementia patients, and all of the interview data was

collected by recording, translating verbatim, recording and analyzing all raw data simultaneously before categorizing them. translating verbatim and recording and analyzing all the raw data. included experences of caring dementia patient of primary caregiver、the primary caregiver knowhow to get help of caring dementia patient、the primary caregiver self-develeped care skills from caring demantia

patient 、knowledge about dementia disease of primary caregiver、the needs of the primary caregivers while caring dementia patient.

The conclusion and suggestion :The finding of this research is that primary caregivers have different needs before and after the dementia patient is diagnosed. The needs of the primary caregiver before the diagnosis are developed an easy screen scale of determine dementia patient from people and an gerneral education about dementia disease. an gerneral education about dementia disease helping people to prevent and know how about dementia disease. The easy green scale would be used by people with a general education.not just for professional stuffs. This would help people to determine if there is enough deterioration in the patient’s faculties and responses or behavioural indications to get a complete early stage diagnosis.The needs of the caregivers after the dementia patient is diagnosed dependent to and proportional to the deterioration of dementia in the patient,including the needs of primary caregiver during the stable stage of the dementia patient、the needs of primary caregiver during the behavior problems happen on the dementia patient、the needs of primary caregiver during the terminal stage of the dementia patient、the needs of primary caregiver for long term careing dementia patient. more over the study make the comparsion between the needs of the primary caregivers while caring dementia patient in taiwan and other countries.and in other countries, some of which have well-developed dementia care system both in informal as well as formal care system. We have not established an adequate dementia care program in Taiwan.Most of the primary caregiver in taiwan do not know hot to get help,they needing a course of helpging resources. As populations around the world continue to age due to advancing treatment protocols that extend life, we will always have some people who fall through statistical cracks in the system. They are our loved ones, our family members, our dearly beloved friends and the people who cared for us when we could not have lived without their love, comfort and direct care. We have a clear responsibility here:

they belong to us now. We must not fail them.

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