• 沒有找到結果。

第五章 討論

第三節 建議

照護體系中一直被忽略的宗教議題對慢性情感疾患者患者靈性健 康的重要性,因此如何協助患者提升其靈性層面的健康,進而提升生活 品質是很重要的,可在臨床上從評估中了解個案的靈性需求,提供個案 靈性需求活動的訊息,例如在疾病穩定時假日外出之機會從事其宗教活 動,另住院期間讓其可以使用宗教相關方式,例如:提供禱告或唸佛經之 空間及宗教友人來訪等。根據本研究結果需評估情感疾患者患者在宗教 活動的參與及其重要性對生活品質之影響,和絕望感及憂鬱症狀亦對多 層面之生活品質的影響,在發展精神照護上可著重在減少患者絕望感的 產生及憂鬱的程度,和患者的靈性健康有助於提升全面性的生活品質。

二、臨床教育方面

研究中發現絕望感、憂鬱及靈性議題宗對信仰及活動的

參與對雙極性情感疾患之影響,以目前醫療照護強調全人照護,即是提 供身、心、靈及社會等層面的照護,因此醫護人員需要具有靈性議題方 面及慢性精神病絕望感、憂鬱相關知識,可以應用於患者照護上,所以 建議在教育上或是在職訓練課程中加入此議題之課程,增加醫護人員的 了解及提供完整的全人照護。

三、研究方面

本研究發現宗教信仰和活動的參與、罹病時間、絕望感和憂鬱對雙 極性情感疾患生活品質的影響及預測力,建議未來可以質性研究探討宗 教議題、及疾病相關因素探討對患者的影響及使用縱貫性研究設計探討 慢性精神疾患生活品質的變化。

參考資料 中文部份

孔繁鐘編譯(2007).DSM-IV

精神疾病診斷準則手冊

.台北市:合記。

王艷萍(2000).

女性憂鬱症患者生病及復原歷程之研究

.未發表的碩 士論文,國立台灣師範大學,台北。

余伍祥、陳明哲、成和玲、林清華(1995).不同醫療環境精神分裂病 患者生活品質之比較.

公共衛生, 22(1)

,115-123。

呂雀芬(1989).

面臨出院精神疾病患者之希望狀態及相關因素探討

. 未發表的碩士論文,國立台灣大學,臺北。

李明濱編(2003).

實用精神醫學

.臺北:永大。

杜明勳(2004).談靈性照顧.

護理雜誌, 51(5)

,78-82。

林佳靜、梁靜祝、黃芬蘭、賴裕和(2004).血液透析患者之希望與社 會持的相關性探討.

臺灣腎臟護理學會雜誌, 3(1)

,17-31。

武茂玲、李美玉、張澤芸(2003).一位日照中心無望感老年人的心理 探討與護理經驗.

馬偕學報, 3,1-14。

邱震寰、郭千哲、陳喬琪、李明濱、林俊宏、林純綺、黃蒂(2004).

自殺企圖者之流行病學特徵.

北市醫雜誌, I,200-207。

范世華(1993). 情感性精神疾病.沈楚文、陳映雪、陸汝斌、馮榕、

陳宏、沈君傑等著.

新編精神醫學

(增訂新版,125-137 頁).台北:

表的

自http://www.libertytimes.com.tw/2001/new/sep/16/today-ml.htm#m02 鄧惠泉、陳喬琪(1988).早發性躁鬱病-文獻回顧.

台北市立療養院 75

年年報,

58-71。

英文部分

American Psychiatric Association. (2000). Diagnostic and Statistical

Manual of Mental Disorders, (4th ed.). , Washington, DC: American

Psychiatric Association.

Anderson, F. D., Maloney, J. P., & Redland, A. R. (1993). Studyof in patients with criticak burn injuries. Journal of Burn Care &

Rehabilitation, 14(2), 207-214.

Angst, J. (1998). The emerging epidemiology of hypomania and bipolar II disorder. Journal of Affective Disorder. 50, 143-151.

Armando, P., Mario, C., Alessandro, D. D., Donatella, M., Cristina, M., Elisa, S., et al. (2007). Health-related quality of life and functioning in remitted bipolar I outpatients. Comprehensive Psychiatry, 48, 323-328.

Atkinson, M., Zibin, S., & Chuang, H. (1997). Characterizing Quality of life among patients with chronic mental illness: a critical examination of the self-report methodology. American Journal of Psychiatry, 154, 99-105.

Baetz, M., Larson, D. B., Marcous, G., Bowen, R., & Griffin, R. (2002).

Canadian psychiatric inpatient religious commitment: An association with mental health. Canadian Journal of Psychiatry, 47(2), 159-166.

Beck, A. T., Brown, G., Berchick, R. J., Stewart, B. L., & Steer, R. A.

(1990). Relationship between hopelessness and ultimate suicide: A replication with psychiatric outpatients. American Journal of

Psychiatry, 147, 190-195.

Beck, A. T., Rush, A. J., Shaw, B. F. & Emery, G. (1979). Cognitive therapy

of depression. New York: Guilford Press.

Beck, A. T., Steer, R. A., Beck, J. S., & Newman, C. E. (1993).

Hopelessness, depression, suicidal ideation, and clinical diagnosis of depression. Suicide and Life-Threatening Behavior, 23, 139-145.

Beck, A. T., Weissman, A., Lester, D., & Trexler, L. (1974). The measurement of pessimism: The Hopelessness Scale. Journal of

Consulting and Clinical Psychology, 4, 861-865.

Campbell, A., Converse, C., & Rodgers, W. (1976). The Quality of

American Life. New York: Russell Sage Foundation.

Carson, R. C., Butcher, J. N., & Mineka, S. (1998). Abnormal psychology

and modern life: 1998 update (10th ed). New York: Addison Wesley

Longman.

Chang, E. C. (2003). A critical appraisal and extension of hope theory in middle aged men and women: Is it important to distinguish agency and pathways components? Journal of Social and Clinical Psychology, 22, 121-143.

Cooke, R. G., Robb, J. C., Young, L. T., & Joffe, R. T. (1996) Well-being and functioning in patients with bipolar disorder assessed using the MOS 20-item short form (SF-20). Journal of Affective Disorder, 39, 93-97.

Corrigan, P., McCorkle, B., Schell, B., & Kidder, K. (2003). Religion and spirituality in the love of people with serious mental illness.

Community Mental Health Journal, 30, 157-171.

Cramer, K. M., & Dyrkacz, L. (1998). Differental prediction of

Maladjustment scores with the Snyder hope subscales. Psychological

Reports, 83, 1035-1041.

Cutcliffe, J. R. (1996). Critically ill patients’ perspectives of hope. British

Journal of Nursing, 5, 674, 687-690.

Cutecliffe, J. R. (1998). Hope, counseling and complicated bereavement reactions. Journal of Advanced Nursing, 28(4), 754-761.

Depue, R. A., & Iacono, W. G. (1989). Neurobehavioral aspects of affective disorder. Annual Review of Psychology, 40, 457-492.

Dias, V. V., Brissos, S., Frey, B. N., & Kapczinski, F. (2008). Insight, quality of life and cognitive functioning in euthymic patients with bipolar disorder. Journal of Affective Disorders, 10, 1-10.

Ellicott, A., Hammen, C., Gitlin, M., Brown, G., & Jamison, K. (1990). Life events and the course of bipolar disorder. American Journal of

Psychiatry, 147, 1194-1198.

Farran, C. J., Herth, K. A. & Popovich, J. M. (1995). Hope and

Hopelessness: Critical Clinical Constructs. Sage Publications,

Thousand Oaks, CA.

Ferrans, C. E. (1990). Quality of life conceptual issues. Seminars in

Oncology Nursing, 6(4), 248-254.

Ferrans, C. E. & Powers, M. J. (1985). Quality of life index: Development and psychometric properties. Advance in Nursing Science, 8(1), 15-24.

Fitchett, G., Burton, L, A., & Sivan, A. B. (1997). The religious needs and reasource of psychiatry inpatients. The Journal of Nervous and Mental

Disease, 185(5), 320-326.

Gazalle, F. K., Hallal, P. C., Andreazza, A. C., Frey, B. N., Anna, M. K. S., Weyne, F., et al. (2007). Manic symptoms and quality of life in bipolar disorder. Psychiatry Research, 153, 33-38.

Goldberg, J. F., Keck, P. E. (1999). Summary of findings on the Course and outcome of bipolar disorders. In J. F. Goldberg, M. Harrow (Ed.),

Bipolar disorders: clinical course and outcome. American Psychiatric

Press,Washington, 275-288.

Goldman, H. H., & Gattozzi, A. A., & Aube, C. A. (1981). Definition and counting the chronically mental ill. Hospital & Community Psychiatry,

32, 21-27.

Goodwin, E. K., & Jamison, K. P. (1990). Manic-depressive illness. New York: Oxford University Press.

Hawton, K., Sutton, L., Haw, C., Sinclair, J., & Harriss, L. (2005). Suicide and Attempted suicide in bipolar disorder: a systematic review of risk factors. Journal of Clinical Psychiatry, 66, 693-704.

Hayward, P., & Bright, J. A. (1997). Stigma and mental illness: A review and critique. Journal of Mental Health, 6, 345-354.

Herth, K. (1990). Fostering hope in terminally ill people. Journal of

Advanced Nursing, 15, 1250-1259.

Herth, K. A. (1992). Abbreviated instrument to measure hope: Development and psychometric evaluation. Journal of Advanced Nursing, 17(2), 1251-1259.

Kaplan, H. I., & Sadock, B. J. (1998). Synopsis of psychiatry: Behavioral

scirnces/clinical psychiatry (8th ed.). Baltimore: Williams & Wilkins.

Katz, R., & McGuffin, P. (1993). The genetics of affective disorder. In Chapman., J. P., Chapman., & Fowles, D.C. (Eds.). Experimantal personality & psychopathology Research (pp. 201-221). New York:

Springer Publishing Company.

Katzow, J. J., Hsu, D. J., & Ghaemi, S. N. ( 2005). The bipolar spectrum: a clinical perspective. Bipolar Disorder, 5, 436-442.

Keck, Jr. P. E., McElroy, S. L., Strakowski, S. M., Bourne, M. L., & West, S.

A. (1997). Compliance with maintenance treatment in bipolar disorder.

Journal of Psychopharmacol, 33, 87-91.

Keck, P., Mcelroy, S., & Strakowski, S. (1998). 12-momth outcome of patients with bipolar disorder following hospitalization for a manic or mixed Episode. Journal of American Psychiatry, 155, 646-652.

Kennedy, N., Foy, K. (2005). The impact of residual symptoms on outcome of major depression. Current Psychiatry Rehabilitation, 7, 441-446.

Koening, H. G., Pargament, K. I., & Nielson, J. (1998). Religious Coping and health atatus in medically illness hospitalized Older aldults.

Journal of Nervous and Mental Disease, 186, 513-521.

Kwon, P. (2000). Hope and dysphoria:The moderating role of defense mechanisms. Journal of Personality, 68, 199-223.

Lehman, A. F., Ward, N, C., & Linn, L, S. (1982). Chronic Mental Patient:

The quality of life issue. American Journal of Psychiatry, 139 (10), 115-125.

Leidy, N. K., Palmer, C., Murray, M., Robb, J., & Revicki, D. (1998).

Health-related quality of life assessment in euthymic and depressed patients with bipolar disorder. Psychometric performance of four self-report measures. Journal of Affecttive Disorder, 48, 207-214.

Lindgren. K. N., & Coursey, R. D. (1995). Spirituality and serious mental illness: A two-part study. Psychsocial rehabilitation Journal, 18(3), 93-111.

Mcgee, R. F. (1984). Hope: Factor influencing crisis resolution. Advance in

Nursing Science, 6(1), 34-44.

Mendlewicz, J., & Rainer, J. D. (1977). Adoption study supporting genetic transmission in manic-depressive llness. Nature, 268, 327-329.

Mickley, J. R., Soeken, K., & Belcher, A. (1992). Spiritual well-being, religiousness a hope among women with breast cancer. IMAGE:

Journal of Nursing Scholarship, 24(4), 267-272.

Miller, J. F., & Powers, M. J. (1988). Development of an instrument in measure hope. Nursing Reasearch, 37(1), 6-9.

Mitchell, L., & Romana, S. (2003). Spiritual belief in bipolar affective Disorder:their relevance for illness management. Journal of Affecttive

Disorder, 75, 247-257.

Natalie, C., Arnette, A., Mascaro, N., Carmen., Santana, M.C., David, S. et al. (2007). Enhancing Spiritual Well-Being Among Suicidal African American Female Survivors of Intimate Partner Violence. Journal of

Clinical Psychology, 63(10), 909-924.

Nancy, K. L., Cynthia, P., Megan, M., Janine, R., & Dennis, A. R. (1998).

Health-related quality of life assessment in euthymic and depressed patient with bipolar disorder. Journal of Affective Disorder, 48, 207-214.

Newman, C. F. (2005). Reducing the Risk of Suicide in Patients with Bipolar Disorder: Interventions and Safeguards. Cognitive and

Behavioral Practice, 12, 76-88.

Oxford English Dictionary. (1989). Oxford English Dictionary, (2nd ed., Vol. VII, pp.379). Clarendon Press, Oxford.

Ozer, S., Ulusahin, A., Batur, S., Kabakci, E., & Saka, M. C. (2002).

Outcome measures of interepisode bipolar patients in a Turkish sample.

Social Psychiatry Epidemiol, 37, 31-37.

Pargament, K. I., Koening, H. G., & Perez, L. M. (2000). The Many

Methods of Religious Coping: Development and Initial Validation of the RCOPE. Journal of Clinical Psychology, 56(4), 519-543.

Paykel, E. S., & Cooper, Z. (1992). Life events and social stress. In E. S.

Paykel, (Ed.), Handbook of affective disorders, (2nd ed., pp. 149-170).

Churchill Livingstone, Edinburgh.

Piccinni, A., Catena, M., Debbio, D., Marazziti, D., Monje, C., Schiavi, E., et al. (2007). Health-related quality of life and Functioning in remitted bipolar I outpatients. Comprehensive Psychiatry, 48, 323-328.

Rang, L. M., & Penton, S. R. (1994). Hope,hopelessness,and suicidality in college students. Psychological Reports, 75, 456-458.

Regier, D. A., Kaelber, C. T. (1995). The epidemiologic catchment area

(ECA) program: Studying the prevalence and incidence of

psychopathology. Textbook in Psychiatric Epidemiology (pp. 133-157).

New York: John Wiley.

Robb, J. C., Cooke, R. G., Devins, G. M., Young, L. T., & Joffe, R.T. (1997).

Quality of life and lifestyle disruption in euthymic bipolar disorder.

Journal Psychiatry Research, 31, 509-517.

Roger, D. F. (2007). Spirituality and religious in recovery: Some Current Issues. Psychiatric Rehabilitation Journal, 30(4), 261-270.

Sayar, K., Acar, B., & Ak, I. (2003). Alexithymia and suicidal behavior.

Journal of Psychiatry and related sciences, 40(3), 165-173.

Sierra, P., Livianos, L., & Rojo, L. (2005). Quality of life for patients with bipolar disorder: Relationship with clinical and demographic variables.

Bipolar Disorders, 7, 159-165.

Snyder, C. R., Harris, C., Anderson, J. R., Holleran, S. A., Irving, L. M., Sigmon, S. T., et al. (1991). The will and way: Development and validation of an individual-differences measure of hope. Journal of

Personality and social Psychology, 60, 570-585.

Suppes, T., Dennehy, E. B., Gibbons, E.W. (2000). The Longitudinal course of bipolar disorder. Journal Clinical Psychiatry, 6(9), 23-30.

Tepper, L., Rogers, S. A., Coleman, E. M., & Malony, H. N. (2001). The prevalence of religious coping among persons with persistent mental illness. Psychiatry Service, 52(5), 660-665.

Thunedborg, K., Black, C. H., & Bech, P. (1995). Beyond the Hamilton depression scores in long-term treatment of manic-melancholic patients: Prediction of recurrence of depression by quality of life measurements. Psychotherapy Psychosom, 64, 131-140.

Timothy, P., Daleman., & Jay, S. K. (2006). Spirituality and depressive symptoms in primary care outpatients. Journal of Southern Medical,

99(12), 1340-1344.

Tohen, M., Hennen, J., & Zarate, C. (2000). Two-year syndromal and functional recovery in 219 cases of first-episode major affective

disorder with psychotic features. Journal of American Psychiatry, 157, 220-228.

Vojta, C., Kinosian, B., Glick, H., Altshuler, L., & Bauer, M. (2001).

Selfreported quality of life across mood states in Bipolar disorder.

Comprehensive Psychiatry, 42, 190-195.

Weisburd, D. (1997). Spirituality: The search for meaning. The Journal of the Calfornia Allance for the Mentally Ill, 8(4), 1-2.

Weissman, M. M., Bland, R., Camino, O. J., Faravelli, C., Greenwald, S., &

Hwu, H. G. (1996). Cross-national epidemiology of major depression and bipolar disorder. Journal of American Medical Association, 276, 293-299.

Yatham, L. N., Lecrubier, Y., Fieve, R. R., Davis, K. H., Harris, S. D., Krishnan, A. A. (2004). Quality of life in patient with bipolar I depression: data from 920 patients. Bipolar Disorders, 6, 379-385.

Yen, C. F., Chengc, C. P., Huanga, C. F., Yen, J. Y., Ko, C. H., & Chen, C.

S. (2008). Quality of life and its association with insight,adverse

effects of medication and use of atypical antipsychotics in patients with bipolar disorder and schizophrenia in remission. Bipolar Disorders, 10, 617-624.

Young, R. C., Biggs, J. T., Ziegler, V. E., & Meyer, D. A. (1978). A rating scale for mania: Reliability, validity and sensitivity. Journal of

Psychiatry, 133, 429-435.

附錄一

四、預期試驗效果:可暸解雙極性情感疾患的宗教因應對於提升希望感與生活品 質之相關性

五、緊急狀況之處理:遇有令您感到不舒服的主題時,給予尊重其不回答的決定,

並在研究前及研究進行中可隨時要求停止,受訪過程中,若您感到任何的不適,

將立即中止(問卷或訪談),並提供必要之協助。

六、費用:本試驗您無須負擔試驗費用。

七、賠償:若發生由計畫執行所引起之傷害時,將依法處理相關責任問題。

八、機密性:

1.一個試驗代碼將代表您的身分,此代碼不會顯示您的姓名、身分證字號、住址。

2.對於您受訪的結果及診斷,試驗主持人將持保密的態度。除了有關機關依法調 查外,試驗主持人會小心維護您的隱私。

3. 行政院衛生署與本院人體試驗倫理委員會依法調查,在不危害您隱私情況 下,得以檢視您的資料。

九、如本試驗計畫成果產生學術文獻發表、實質效益或衍生其他權益時,亦同

意無償捐贈給本院作為疾病預防、診斷及治療等公益用途。

十、權利:

受訪者或立同意書人有權在無任何理由情況下,隨時要求終止參與試驗。

受試者(或法定代理人)簽署: 日期: 年 月 日

病歷號: ※務必請受試者自行填寫日期欄位

見證人簽署 : 日期: 年 月 日

計畫主持人簽署: 日期: 年 月 日

註:未滿廿歲之受試者或法律宣告禁治產權者,須由法定代理人簽名始生效。

附錄二

附錄三

附錄三(續)

附錄四

附錄五

附錄五(續)

附錄六

附錄七

附錄七(續)

附錄七(續)

附錄八

附錄九

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